Tuesday, 1 December 2015


General Pacing Posts:
Disposable Energy May 2016
"Play-Up & Lay-Up" not "Boom & Bust" Sept 2014
Circles of Influence & ME Aug 2015
Do you STOP soon enough? March 2015
POST Emptive Rest June 2015

Thoughts on "Exercise" and ME:
Graded Exercise Therapy? No Thank You! Sept 2015
The Exercise Catch 22! Jul 2014
ME Awareness - Why NOT Exercise? May 2014
The Dilemmas of Exercise and M.E.  Dec 2013

ME Awareness Posts:
ME Mortality June 2016
Some Days - All Days? April 2016
Well Enough to Drink Coffee? May 2015
10 Things ME Patients Need NOW! March 2015
Living Death Disease?? Aug 2014
ME Awareness - Why NOT Exercise? May 2014
ME - A "Controversial" Illness!  Dec 2013

Heart Rate Monitoring Posts:
Heart Rate Monitoring: Numbers Dec 2015
Starting Heart Rate Monitoring for ME Dec 2015
Heart Rate Monitoring & NICE Guideline for ME Nov 2015
Rhythm+ and Endomondo: HR monitoring for ME Aug 2014
A few notes on using a HR Monitor for Pacing Feb 2014

Fitbit and Step Counting Posts:
Monitoring ME: Fitbit Sept 2014
Pacing for M.E. - And Using a Fitbit  Dec 2013

Some Grumbles of Mine:
I'm not just tired! March 2016
Work-Sick Divide? March 2016
What is ENOUGH? Aug 2015
Little Rant about "Positive Thinking"! Jan 2015
Cargo Cult Cures April 2015

Thoughts on Research articles:
When "auto-pilot" fails! (Re this paper on Gait Automaticity) Jan 2016

About Me:
About me & "Just ME" March 2016
The Use of Patient Blogs as a Care Resource
(My video presentation at Queens University Belfast) Sept 2015
The Me that Used to Be May 2014
Are You Tired Sally? Dec 2013

Relating to PACE Trial "fear avoidance" paper Jan 2015:
Newry & Mourne Group receive Expert Statement from Dr Jonathan Kerr Feb 2015
Prof. VanNess on recent press reports Jan 2015
Dr William Weir rejects "exercise phobia" in ME! Jan 2015
Tom Kindlon puts PACE in its place! Jan 2015

Some other posts of interest:
A New Hobby Oct 2015
Pacing and Unpredictable Events Sept 2014
Green Spaces and ME July 2015
Thoughts on Travel and ME Mar 2014

ME Awareness Day Campaigns and Other Positive News:
#May12BlogBomb Link List for 2016 May 2016
#May12BlogBomb 2015 Link List May 2015
Greg Crowhurst - Short-listed for Nurse of the Year! March 2015
Black Dress Selfies for Severe ME Aug 2014
May 12 Blog Bomb Link List  May 2014

Karina Hansen:
Karina Hansen - URGENT Please sign this letter to the Danish PM Oct 2015
Karina's Story - A Modern Tale of Horror!! July 2014

Northern Ireland Conferences and Campaigns:
Chasing Competent Care conference report June 2016
Professor Coyne how can we thank you enough? Feb 2016
#InvisibleME Symposium - Belfast March 2015
The Northern Irish Situation for ME & Fibromyalgia March 2015
Update on 'Adopt CCC for ME' petition Jul 2014
Adopt CCC - Initiative by Newry & Mourne ME FMS Support Group Mar 2014
Dr Mark VanNess in Northern Ireland! Feb 2014
Not all of the posts on the blog are listed.
Updated to mid June 2016

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